Research Summary and Ethical Considerations in Nursing

Many people with Epilepsy want to know more: a qualitative study Student name: School name: Many people with epilepsy want to know more: a qualitative study Introduction Key words such as choice, concordance, shared decision making are concurrently applied in the management of chronic illness in many parts of developed countries. Most patients prefer delegating treatment responsibilities to their doctors but doctors on the other hand prefer a more collaborative approach. Patients often feel in control of their lives once they have sufficient information which helps them recognize treatments and their side effects. In the 80s a qualitative research was conducted and results showed that information about the illness is lacking and people’s experience on epilepsy is vague. People had contradicting opinions about seizures and strategies of management. However in the 90s, studies were conducted using questionnaires which revealed that epileptic people lacked knowledge about the condition and instead for more information about it. They wanted information that dwelled on treatment options, seizure control, social issues, medication, injury prevention, lifestyle, side effect and diagnosis. A UK survey discovered that as patient satisfaction increased there was a decrease in information provision about the epileptic condition. Background of study Episodes of epilepsy are considered to have the preferred treatment yet there is no definite information on how patients would get the right medication. People come up with reasons why they do not opt for epilepsy emergency care. Some claim that economic, personal and social reasons are among the factors that hinder them to receive ongoing medical attention. This qualitative study is aimed at understanding why most people in this state insist for more information about their condition. Therefore, it will assist in identifying possible factors which may help to modify the situation. The key hypothesis lies on the reasons why most patients with epilepsy insist for epileptic information People want to be aware about the causes of epilepsy because they develop fear attached to stigmatization and abrupt deaths. Such information is significant to nursing because it will help nurses “focus on the patient’s feelings, meanings and experiences” (Bowling, et al, 2002, pg. 102) and patients will develop the freedom to express their views and opinions about the severance of their conditions. Therefore, nurses will be in a better position to know how to handle epileptic patients and consultants can be able to give proper medication. A brief summary of the qualitative research article titled “Many people with Epilepsy want to know more: a qualitative study” (Alison, Andrew, Ann & Suman, 2004) will be the main focus of this paper. A qualitative study reveals reasons why people insist for more information unlike a quantitative study which only provides the number of people who require certain information. Methods Researchers preferred to use a grounded theory research design because it is based in the observations or data from which the study was developed and a number of sources such as review of interviews, surveys were used alongside it. Researchers invited people from across the UK border ...